ENLACES
Sociedad Cientifica:
Sociedad Española de
Fibrosis Quística.
Asociaciones Españolas de Fibrosis Quística:
Asociación
Andaluza contra la Fibrosis Quística.
Asociación Catalana contra la
Fibrosis Quística
Asociación
Madrileña contra la Fibrosis Quística
Asociación
Valenciana contra la Fibrosis Quística
Revistas de Medicina
Acta
Pediatrica
El Centro
Cochrane Español: El principal objetivo de la CC es preparar, mantener
y divulgar revisiones sistemáticas y actualizadas de la evidencia
científica. Grupo Cochrane de
Fibrosis Quística : El Centro Cochrane está realizando una
revisión sobre la Fibrosis Quística.
Trasplante de Pulmón
Organización Nacional de
Transplante de Organos
Grupo de Transplante Pulmonar del Hospital La Fe de Valencia.
Asociación Valenciana de
Trasplates de Pulmón (AVTP)
Asociación de Trasplantados de Corazón y
Pulmón de Asturias (ATCP-Asturias)
Donación y Trasplante de Organos y
Tegidos: Hospital General Universitario de
Alicante. Esta página tiene información sobre los trasplantes de organos,
información de cursos, noticias, del proceso de la donación y el
trasplante de organos, de la Organozación Nacional de
Trasplantes.
Lugares de medicina relacionadas con la Fibrosis Quística
Web PEDiátrica
infantil: Web PEDiátrica ha sido elaborada para 2 grupos de personas:
Para PEDIATRAS (sección de Medicina Infantil) y para PADRES (Información
para Padres). Incluye información
para padres sobre Fibrosis Quística. Realizada por Julio Guerrero
Fernández.
PAGINAS INTERNACIONALES(en ingles).
Páginas Personales:
Cystic fibrosis Web: The mother of all
CF sites. Ages ago, when I started swimming around the Web, this was the
only place dedicated to CF. Now that the list has become longer, it still
deserves the number one spot.
Cystic Fibrosis 101
(Canada) A collection of over 250 links all related to cystic
fibrosis.
Muco Web, Jean
Charles Favre home page (Switzerland) Cystic Fibrosis and
transplantation in french; with links in many languages.
Sarah's Walter Cystic
Fibrosis home page
A site created by an adult with CF who also
happens to be a doctor. Contains both personal experience and professional
information. Also includes the Cochrane Collaboration CF Group home page,
and some abstracts and slide presentations of her research. Her
autobiography is also online.
Organizaciones
ABRAM. Associação Brasileira de Assistência a
Mucoviscidose.(Brasil)
Association
Française de Lutte contre la Mucoviscidose (Francia)
Cystic
Frobosis a medrise comunity
Cystic Fibrosis Foundation (USA)
Cystic Fibrosis Research Incorporate CFRI
(USA)
California based nonprofit organization dedicated to
educating people about CF and funding research that hopefully will lead to
a control or cure of CF. It's the only CF organization in the United
States which sponsors a conference for laypeople on CF.
In 1995 IACFA
and CFRI held a joint conference in Palo Alto, and this very successful
event will be repeated in 1999 in San Jose (CA).
Cystic
Fibrosis Mutation Data Base
Canadian Cystic Fibrosis
Foundation (Canada)
Fondation canadienne de la
fibrose cystique (Canada)
Site officiel du Comité Provincial
des Adultes Fibro-Kystiques - ACFCQ (Canada)
The ACFCQ is a
non-profit organization representing Quebec's CF adults. This site offers
information and exchanges for CF adults of Quebec and elsewhere as well as
for all those who are affected directly or indirectly by cystic fibrosis.
It's both in french and english. Watch out the question of the month
and try to write your point of view.
Cystic Fibrosis Association of
Western Australia
The Cystic Fibrosis
Association of Victoria (Australia).
The Cystic Fibrosis Cyber
Campus, previously CF association of Ireland.
The Cystic Fibrosis
Trust Home Page (UK)
The university of Chicago
children's hospital
Riksförbundet
Cystisk Fibros (Sweden) Currently it's only in
swedish.....
Mukoviszidose
e.V. (Germany)
CF-Selbsthilfe
Kvln e.V. (Germany)
Nederlandse Cystic Fibrosis
Stichting (Netherland)
Belgische
vereniging voor strijd tegen mucoviscidose
Association belge de lutte contre la
mucoviscidose (Belgium) The Belgian CF Association.
Lega Italiana delle Associazioni per la
lotta contro la Fibrosi Cistica (Italy) Includes a list of italian CF
centers, clinics and regional associations.
The Cystic Fibrosis Association
Address Book Homepage
Includes a list of CF clinics around the
world.
National Organization for Rare
Disorders, Inc. - NORD (USA)
The National Organization for Rare
Disorders (NORD) is a unique federation of voluntary health organizations
dedicated to helping people with rare "orphan" diseases and assisting the
organizations that serve them. NORD is committed to the identification,
treatment, and cure of rare disorders through programs of education,
advocacy, research, and service.
Second wind (USA)
This web site is concerned exclusively with lung transplantation.
Second Wind is run by lung transplant recipients and is intended as a
support group for people who have had, or are waiting for, a single-,
double-, or heart-lung transplant.
Keuhkovammaliitto - (Finland)
Association of the Pulmonary Disabled (in finnish and english)
Revistas de Medicina
American Journal of Clinical Nutrition
American Journal of Infection Control
The American Journal of Medicine
American Journal of Medical Genetics
The American Journal of Medicine
American Journal of Physiology: Heart and Circulatory
Physiology
American Journal of Respiratory and Critical Care
Medicine
Annals of Internal Medicine
Annals of
Thoracic Surgery
Archives of Disease in Childhood (includes Fetal and
Neonatal edition)
BMJ (British Medical Journal)
British Journal of Nutrition
British Journal of Radiology
(BJR)
British Medical Bulletin
Canadian Medical Association
Journal
Chest
Clinical Infectious Diseases
Clinical Science
Emerging Infectious
Diseases
European Journal of Clinical Microbiology &
Infectious Diseases
European Journal of Pediatrics
Grupo
Cochrane de Fibrosis Quística : The Cochrane Collaboration is an
international network of individuals and institutions committed to
preparing, maintaining, and disseminating systematic reviews of the
effects of health care.
Heart & Lung: the Journal of Acute and Critical
Care
Human Genetics
Internet Journal of
Emergency and Intensive Care Medicine
Journal of Antimicrobial Chemotherapy
Scientific American
The Journal of Clinical
Investigation
The Journal of Heart and Lung
Transplantation
The Journal of Infectious Diseases
Journal of Medical Genetics
The Journal of Pediatrics
The Journal of Thoracic and Cardiovascular
Surgery
The Lancet
Microbiology
Nature
New England Journal of Medicine
Pediatric Pulmonology
Pediatrics
Publicaciones
de la Asociación Médica Americana
Thorax
Trasplante Pulnmonar
ISHLT Home Page
TransWeb - Transplantation and Donation
Second Wind
Lung Transplant Association, Inc.
AMERICAN SHARE
FOUNDATION
Transplant Square Homepage
